As of 8:00 this morning Brian and Jami had to be at the hospital to meet the care flight scheduled to take Ezra to the Primary Children's Hospital in Salt Lake City. I'm not sure yet if both Brian and Jami are going to be able to go with the baby on the helicopter...I should know in the next couple of hours.
Ezra is going to have to have reconstructive surgery on his little chin. When he was born his chin was pushed back much further than normal. The doctors are led to believe that his sunken in chin was the cause of him having a cleft pallet. However, the primary concern for him right now is his chin rather than the cleft pallet. With the way his chin is fromed right now, he is unable to breath onless he is on his side or his tummy and he has to be fed through a tube that is inserted through his nose and goes directly into his stomach. So as far as I understand the doctors are going to have to insert some "extenders" in his jaw to bring his whole jaw and chin forward. There is so much unknown at the moment and we are just waiting to hear the new news throughout each day. It has all been changing so fast and has been extremely emotional for Brian and Jami! Please please keep their family in your thoughts and prayers! Thank you for all your concern. I will keep updating as I find out new information.
9 comments:
Hey Amber thanks for the update. Love you. My thoughts are with them constantly.
I am so glad you posted about them. I was wondering how things were going. They are all in our prayers. Let me know if I can do anything. Watch kids, make food, ANYTHING to help them. I worry about Jamie. Thanks for the updates. Let me know if you guys need anything too.
Amber, we can help out too...just let us know. They are in our constant thoughts.
Thank you for the update. Primary children's is an amazing place. We will keep them in our prayers.
We are definately thinking of them and praying for the best outcome. Kevin wonders if they think it might be something called Pierre Robin Sequence (that has cleft palate, small lower jaw, and retruded tongue). Kevin is kind of a nerd if you didn't already know that.
Thank you so much for the update Amber. Please let them know if there is anything that I can do for them, don't hesitate to call. I have them all in my prayers. Please tell them we love them!
Amber, is there an address that we could send them a little money for whatever they want while at the hospital? I know that when Julie was in the hospital it was a total blessing for us when people gave us money so we could just eat at the hospital. Let us know. Love Ya Tons!
Sure sounds like you are right Kevin. That school must be doing you some good. :) :) It was interesting to read about and know what they do to fix the problem. Thanks for that info.
Oh my goodness!!! I hope all is well. We are thinking and praying for your whole family, especially Brian and Jami!
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